So an interesting dynamic happens especially when you have more than one child, in Matt's case it was his sister Kyra that is 5 years older than him. When one has a deadly disease Grandparents, parents,cousins and strangers treated him differently. Mainly giving him "anything" he wanted. People want him to experience life in a consolidated amount of time, if his fate turns for the worst and the ramifications of that sort of treatment is he becomes a tyranical king and learns some very bad behaviors. People want to help or comfort and feel good by giving him anything he requests helps, but it does not...Especially with his sister who is confronting cancer in the family in her own way and dealing with not as much attention and love...
In mid 2010 Mattie was stabalized and doing well and we began to put a cap on the kings tyranical reign and things have somewhat turned for the better and Kyra seems happier. She suffered terribly early on being pushed aside, not knowing what was happening and why. She was truely terrified that her whole family was going to come crashing down. We got help for her at the childrens health council and she went to Siblings camp on her own to be with others that are in her boat...
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