Friends, the good & the not so good

What I've realize over the past week is that friends will always be there even if they get mad for no reason. Friends will ALWAYS give you a shoulder, through thick and thin. Friends reach for your hand but touch your heart. To me there practically a sister.

Heres a shout out to my sisters: Alice, Nina, lauren, Elaine, Meiya amanda yes, I'm talking about you.

Staying strong

"Cancer". CANCER! When I hear people say that, that word, to me it's a slap in the face. People talk about how serious it is or how terrible it is, but they wouldn't know. I know because I live and breathed it second hand next to my brother. I hear it at school and in stores, and just about everywere. The hard part is when people find out they assume the worst even if you can almost grasp the end, and it feels like there pulling you away, shooting you down when your so close to success. So close now, hopefully.

My experience

This is Kyra and I am Matthew's older sister. In the beginning, I was scared and felt lost. I was now a sibling of a cancer patient. I remember our pediatric doctor calling my mom saying that we needed to go to Stanford hospital. we were there for 8 hours. Then dad took me home at 2 a.m.,while mom and Matt stayed behind. That's when it all started.....

Turn it up...

This week Matt goes in for his spinal tap, where they will extract fluid that surrounds his spinal cord and replace that fluid with liquid methotrexate. He has this procedure every 85 days and luckily after this he will only have this procedure 3 more times

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The build up of this compound was one of the reasons he had a CNS seizure in 2010 and since that time he had to be pre-medicated 24 hours before his procedure and 24 hours post procedure and it was done through an IV in liquid form using a medicine called amanopholine. This required a 3 day in patient visit to the hopital each time. The hospital ran into some issues last year with scheduling and having beds available so decided in order to streamline, they would make this procedure outpatient and he would take his amanopholine in pill form every 7 hours and the day of his procedure it would be about a 6 hour visit to the hospital. We had many concerns about this change and became obdurate to this new policy.We have agreed to make this change as long as no complications and will turn up our alertness to watch for anything out of the ordinary. In a way this whole thing is anything but ordinary...

Sometimes, the shoe doesn't fit.

Some people in America have forgotten how business and services work. You have a choice, shop around, get the people on your team that you trust, value, and you can profit from….You CAN fire your lawyer(don’t tell them I told you so), your accountant(if your assets need one), and your doctor or nurse practitioner at anytime you feel like it….

After or Fellow left, we were not assigned another Fellow, but an NP(Nurse Practitioner).

Erica was good, but obviously overloaded, and when we learned she was moving to the east coast because of her husband’s job, we were worried. We were assigned NP Christie and right off the bat it was a poor match. Her issues stemmed from a know it all attitude and a how dare you question my authority…We had a meeting with the head doctor and

Our social worker on the troubles and they tried to quell our emotions…

We ended up firing Christie, which was not fun, funny, or enjoyable but absolutely necessary. We now have NP Tara and she is awesome so far and we are back on track…

God bless the power granted the people and freedom we have to make choices…