Turn it up...

This week Matt goes in for his spinal tap, where they will extract fluid that surrounds his spinal cord and replace that fluid with liquid methotrexate. He has this procedure every 85 days and luckily after this he will only have this procedure 3 more times

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The build up of this compound was one of the reasons he had a CNS seizure in 2010 and since that time he had to be pre-medicated 24 hours before his procedure and 24 hours post procedure and it was done through an IV in liquid form using a medicine called amanopholine. This required a 3 day in patient visit to the hopital each time. The hospital ran into some issues last year with scheduling and having beds available so decided in order to streamline, they would make this procedure outpatient and he would take his amanopholine in pill form every 7 hours and the day of his procedure it would be about a 6 hour visit to the hospital. We had many concerns about this change and became obdurate to this new policy.We have agreed to make this change as long as no complications and will turn up our alertness to watch for anything out of the ordinary. In a way this whole thing is anything but ordinary...